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The Parker Lee Project

TPLP Logo-page-001The Parker Lee Project is a 501c3 non-profit dedicated to helping the families of special needs and medically dependent children obtain the medical supplies and equipment they desperately need. We know the struggles with insurance companies. So when they can’t get you what your child needs, we provide what we can free of costs to the family. To read about our story, the process, or ask us any questions, please visit the website.


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Accessible Technology

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Resource Description
Accessible and Assistive Tehnology Directory from Rehab Tool A comprehensive directory of accessible and assistive tech organizations, products and services, and informational websites.
Adorabelly Design Feeding tube covers who put the FUN in functional!
AT Kids Learning Systems Learning for Children-Exploration software is developmentally appropriate for children 3-5 years. The software provides fun, educational activities for children to play while simultaneously evaluating student performance.
Center for Accessible Technology Focuses on access to computers and technology for people with disabilities
HIP Bands (Trendy Medical Alert bands and bracelets that store health info) HealthID Profile or HIP combines trendy medical alert bands for children and adults using cloud technology that allows users to store all of their medical information in their HIP bands, making it easily accessible especially during an emergency
Karman Healthcare – Manual and Standing Wheelchairs Wheelchair manufacturer based out of Southern California
Medicaleshop Inc. Medicaleshop.com dba: Home Health Pavilion Inc is an established Home Medical Equipment provider since 1990, with specialization in Custom Manual & Power Wheelchair Seating, Home Accessibility and Rehab Products for Special Needs Kids.
Medicaleshop Inc. Medicaleshop Inc is an established Home Medical Equipment provider with specialization in Custom Manual & Power Wheelchair Seating, Home Accessibility and Rehab Products for Special Needs Kids.
Products for Autism Products for Autism offers a variety of Autism Products. Select from products in categories such as Assitive Technology, GPS Devices, Sensory Integration, Tactile, and ID Tags.
Rehab Tool High-tech assistive, adaptive and accessibility aids for children and adults with as cognitive rehabilitation tools adapted for special needs
Safe n Sound Mobile “Gab n Go Harness” The Gab n Go harness puts your iPod/iPhone and AAC app right where you need it – out in front — making communication easy, accessible, and timely.
Therapy 2000 Assistive Technology Assistive technology (AT) is an item or piece of equipment that can help a patient with tasks that they are unable to perform on their own. Assistive technology can aid patients with activities of daily living, improve quality of
Therapy 2000 For patients without equipment, our therapists have the training and expertise to evaluate the the patient’s skills and areas of need. The therapist will determine if the patient could benefit from assistive technology and if so, which piece of equip


Adaptive Equipment/Toys

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Resource Description
Abilitations Abilitations provides you with information and solutions for children with special needs
Achievement Products Achievement Products provides an excellent collection of therapy, exercise and special education products for children with special needs
Adaptivemall Adaptivemall offers the best selection of adaptive equipment for children with special needs, with competitive prices
Autism-Products.com Supplying pieces to solve the puzzle
Beds by George Safety beds and specialty beds for special needs children
Beyond Play Selling early intervention products for children birth to five with special needs.
Capital City Ambucs To promotes abilities, not disabilities. Our goal is to provide children with disabilities with the opportunity to ride bikes. Our primary focus is on organizing fundraisers in order to raise money to purchase Amtrykes which we then donate.
CARES Child aviation restraint system (approved for special needs use)
Childrite Therapy Seat The Child Rite seat is a support chair for special needs children. It has a high back with a wrap around style to provide support for your child to help strengthen
ComfyLiftbed Its purpose is to relieve acid reflux symptoms while your child sleeps. It is not a cure by itself, but a huge part of the overall treatment for reflux.
Convaid The latest pediatric wheelchair, stroller and special needs products
CribBed CribBed provides safer sleeping and greater comfort for children* and adults with special needs.
Cyrdesigns Handcrafted special needs beds for children elopement issues, autism, and special needs
Different Needz Different Needz sells special needs new and used equipment at a discount. Buy and sell new and gently used medical equipment, therapy equipment,and
Different Roads to Learning Different Roads to Learning carries over 500 products carefully selected to support the Special Needs children and students on the Autism Spectrum
e-Special Needs e-Special Needs is the premier provider of adaptive therapy products including special needs strollers, adaptive toys, clothing, furniture, and other adaptive
Enabling Devices Assistive technology, communication devices, and adapted toys to use in home, school, therapy, or on the go.
Equipment Shop Join the thousands of therapists, schools, hospitals and parents who make Equipment Shop their first stop when choosing the right products for their children, clients and students
Fat Brain Toys Fat Brain Toys – the top online destination for safe, educational toys that will challenge your child’s intellect and stretch their imagination.
Flaghouse All things sports, special needs, and physical education.
Freedom Concepts Freedom concepts builds custome tricycles, bicycles, chairs, and mobility equipment for kids – adults with special needs. pts
Fun and Function Complete selection of Toys and Therapy Products for special needs children from Fun and Function
Handmade Weighted Blankets Handmade Weighted Blankets made with flannel/minky fabric and filled with Non-toxic poly pellets. Machine washable.
Hatchback Shoes Shoes designed to wear over AFOs
International Playthings Toys that make a difference.
Kayserbetten Safety sleep beds for children with special needs and special medical needs
Keeping Pace Shoes designed to wear over AFOs
KidCompanions Chewelry KidCompanions Chewelry for those who have an overwhelming urge to bite, chew or fidget. The pendants are worn around the neck on a 100% organic cotton lanyard or clipped to clothing. They are bpa, phthalate, pvc, lead and latex free. KidCompanions Ch
Learning Journey Learning Jouney toys (especially early learning) are designed with large, sensitive buttons that even children with limited mobility are able to activate. I LOVE these products!!!
Mayer Johnson Mayer-Johnson, creator of Boardmaker, has been the leading provider of symbol-based products and special education products for more than 25 years.
Medicaleshop Inc. Medicaleshop.com dba: Home Health Pavilion Inc is an established Home Medical Equipment provider since 1990, with specialization in Custom Manual & Power Wheelchair Seating, Home Accessibility and Rehab Products for Special Needs Kids.
Melissa and Doug From puzzles to puppets, plush to play food, magnetic activities, music, wooden toys, large stuffed animals and more,
National Autism Resources National Autism Resources provides over 1600 products, toys, games and therapy tools for special needs children.
Noble Toy Co. Noble is a startup company that designs and makes heirloom quality wooden toys, puzzles and games for kids.
Otto Bock Mobility, prostheses, orthoses, rehab and neurostim products and services.
RESQ Wedge The RESQ Wedge is a class 1 medical device designed by an occupational therapist, a physician, and a dietitian in response to head molding and shoulder retraction issues they were seeing in babies
Rifton Top quality durable adaptive equipment to buy direct from Rifton Equipment
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Sensory Sun Educational Technologies Sensory Sun is dedicated to developing appealing technology and educational curricula to ensure your blind or visually impaired child thrives in life from the very beginning. Read our BLOG for hints and tips on adapting products to suit your child.
SleepSafe Beds Safe adaptive beds for special needs children
Snug Seat Comfortable seating systems afford the greatest possible support and mobility.
Southpaw Enterprises Manufacturer of Sensory Integration and Neuro- Developmental Products for the therapeutic professional and special needs person.
Speech Bin Innovative Solutions for all your Speech, Language, and Communication Needs
Sweet Pea Boutique Tactile Sensory Cuddle Blankets with Loops. $5 from every order will be donated to Evas Gift a non-profit organization dedicated to assisting families who have special needs children with items not covered by insurance.
TFH USA We present our range of Special Needs Toys, from mobile Multi-Sensory, to Swings, Trampolines and other Sensory toys.
The Ark Toys The Ark Toys provides quality wooden toys, imaginative, tactile, and sensory toys for all ages
The Sensory University Educational products hand selected for your special needs child
The Special Needs Store Your resource guide to many other organizations offering products and resources for children with special needs and disabilities.
TherAdapt manufactures and distributes finely crafted, innovative pediatric rehab products designed for children with special needs
TLC Sensory Processing Products TLC weighted sensory processing products help children calm and quiet their bodies
Toys for Autism supply company specializing in sensory integration products, oral motor supplies, weighted therapy items and learning aids for children with special needs.
Toys R Us Differently Abled Kids Toys for children with different abilities.
Tucker Designs, Ltd. Slings and wedges for prone, supine and lateral positioning
Tumble Forms Antimcrobial adaptive seating, positioning, and therapy products.
VisorTag & MirorTag for handicapped placards We know that it can be a big hassle to hang and remove the handicapped placard every time you park. VisorTag and MirorTag make your life easier by displaying the placard with a simple swing or snap. Protects and displays – no more broken hooks!
Waterway babies neck ring (One of our top 3 products) A ring that is placed around a child’s neck to allow them to be bathed with other children in the tub, taken to pools during the summer, and used during physical therapy.


Awareness Months/Initiatives

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Resource Description
Dravet.org Promoting awareness and research about Dravet Syndrome and related genetic, febrile sodium channel epilepsies and to provide resources and support to improve the quality of life for affected individuals and families.
Marissa Dream – Wheelchair Teen Spina Bifida teen – facing the adversity of transitioning into adult role/life.
Matthew Says Showing that ALL kids are cool despite their abilities or differences by highlighting Matthew’s funny sayings and silly antics. Matthew is almost 7 and has Apert Syndrome. Help spread the awareness by “Liking” the page and sharing with your friends!
ribbons of hope helping former marine recieve cancer treatments
The Breylon Senn Research Fund In partnership with the UMDF and in honor of Breylon Senn, The Breylon Senn Research Fund raises funds that go directly toward research of mitochondrial disease. Our goal is to be care of a cure for this disease that affects 1 out of 4,000.
The Julianna Rose Childrens Hemiplegia And Stroke Foundation – The JRCHASF JRCHASF is dedicated to helping Children with Hemiplegia Cerebral Palsy and Stroke, and their families. Providing resources, information, and support to all children, who have suffered a brain injury and or stroke, regardless of cause,.
Trisomy Awareness A Facebook Page to Share All aspects of Trisomy Awareness. News, Websites, Organizations, Prenatal Testing, Family Support Resources, Medical Treatment options, Ethical Patient Care and more.


Camps/Travel/Recreation

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Resource Description
About.com Therapy and Respite Camps for Kids with Special Needs Information about summer camps that focus on therapy for kids with special needs and/or respite for the kids and their families broken it into national categories and regional categories in the USA.
Access-able Travel Source Accessible travel information
Camp Resource.com (Subcatagory: Special Needs) Special needs camps for boys and girls that focus on the challenges of special needs that children face.
Disability Links for Wheelchair Users and Disabled Travelers Comprehensive accessible travel listings by countries, travel service, and accomodations.
Disabled Travel Network Disabled Travel Network
Kids Camps.com (Sub Catagory: Special Needs) Comprehensive listing of special needs camps with searchable options by state, diagnosis, and beyond.
Morgan’s Wonderland The first ultra-accessible family fun park 25 acres of rides, attractions and activities for all.
My Summer Camps (Subcatagory: Special Needs) Comprehensive listing of special needs summer camps by diagnosis/need.
SeriousFun Children’s Network A global community of camps that provide programs for children with chronic medical conditions and their families, free of charge.
The Center for Courageous Kids special needs camp
The Guided Tour upervised travel, recreation and vacation program for persons with developmental disabilities and mental retardation
Travel with the Magic Travel agent that specializes in helping families with special needs plan their Disney cruises and vacations.
Very Special Camps A directory of special camps for children with special needs.


Caregiving/Respite

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Resource Description
1st Choice Pediatric Home Care I am the mommy of a miracle and I started 1st Choice Pediatric 14 years ago to provide unmatched care to my son. We serve the entire state of MN, providing nursing services to children and neonates with complex medical needs.
Care.com Find local babysitters, nannies, childcare, and special needs and senior care near you.
Caregiver.com Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.
Desperate for Respite desperate for Respite provides support to caregivers caring for special needs children, dependent adults and their families
Family Caregiving 101 If you are caring for a loved one who is ill or disabled this site was created for you. It is a great place to find assistance, answers, new ideas and helpful advice for you and your loved one.
Iris House Childrens Hospice Iris House is a vibrant charity committed to enriching the quality of life for Special Needs children and young people with life-limiting or life-threatening conditions and providing support for their families. We are based in Cape Town
Loretta’s Little Miracles Daycare and Nursing Nursing Services for Medically Fragile or Developmentally Disabled Children.
National Alliance for Caregiving Offers free support brochures, studies, and information on caregiving.
National Center for Medical Home Implementation This resource is for health professionals families and anyone interested in creating a medical home for all children and youth.
National Family Caregivers Association The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.
National Respite Coalition Mission of the ARCH National Respite Coalition is to secure quality, accessible state respite coalition or organization to make quality respite available
Pediatric Health Choice (FL and LA) and Laurens House (PA) providing daycare services to medically fragile children
PSA Healthcare When it comes to providing for medically fragile children and adults, we know what matters most! We strive to provide the very best for our patients everyday.
Team Daniel Foundation provide families in North Carolina with an opportunity to receive 50 hours of respite services to a family of a loved one with chronic or terminal illness or disability
VIVA Pediatrics Private-Duty and Skilled Nursing for Medically Fragille Children


Church/Ministry

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Resource Description
American Baptist Home Mission Societies enabling full inclusion in society and local congregations
Catholics with Disabilities church access for persons living with disabilities
Christian Church Foundation for the Handicapped provides the widest range of published resources for persons and churches engaged in all aspects of disability ministry. They offer a seminary-based certificate program in disability ministry, and provide residential and independent living services for ad
Christian Council on Persons with Disabilities This website provides an extensive list of Christian organizations serving individuals with disabilities. At this writing, some information on the website didn?t appear current.
Council for Jews with Special Needs, Inc. The Council “is a non-profit human resources agency, composed of concerned individuals working together to ensure that all Jews have the opportunity to fully participate in the richness of Jewish religious, cultural, and social life.” The website includes
Evangelical Lutheran Church in America God, the Great Artist, has created a globe rich with diversity. Each person, flower, star and sea is beautiful and distinct. Disability and Deaf ministries recognize the beauty of each unique person and strives to provide information, resources and networ
Friendship Ministries this ministry serve youth and adults with dd
Interfaith Disability Network educates and engages faith communities in cultivating mutually beneficial relationships with people with disabilities.
Joni and Friends Joni and Friends Ministries is dedicated to extending the love and message of Christ to people who are affected by disability, whether it is the disabled person, a family member, or friend. They seek to meet the physical, emotional, and spiritual need of
Key Ministry where every church should be for every child
LifeWay Special Needs Ministry tools for ministry to the special needs community
McLean Bible Church McLean Bible Church Access Ministry is one of the largest church-based disability ministries in the United States
Nathaniel’s Hope Nathaniel?s Hope is dedicated to sharing hope with kids with special needs (VIP kids) and their families
National Catholic Partnership on Disability A variety of resources and documents about church’s mission and positions relating to people with disabilities.
National Jewish Council for the Disabled This orthodox organization maintains a national resource center, a national center for inclusion, and “mainstreamed” and self-contained social and recreational activities.
Pathways to Promise Pathways to Promise is an interfaith cooperative of many faith groups. We provide assistance and are a resource center which offers liturgical and educational materials, program models, caring ministry with people experiencing a mental illness and their f
Snappin Ministries Welcome to Snappin’ Ministries, a nationwide support network for parents of children with special needs. Our mission is to support and encourage those living with the daily challenge of parenting a special needs child, so that they may experience the genu
Special Angels Adoption We advocate for the adoption of special needs little ones
The Episcopal Disability Network an organization of the Episcopal Church. We work for the inclusion of people with disabilities into the life of the church and of societ
The Evangelical Covenant Church Disability Ministry The Evangelical Covenant Church seeks to network, educate, and resource Covenant churches so that persons with disabilities and their families are effectively served and fully included in the life and ministries of the ECC and their local communities.
The Inclusive Church helping churches successfully include children with special needs
The United Synagogue of Conservative Judaism United Synagogue of Conservative Judaism’s site for information about programs, services, and access that welcomes people with disabilities
Unitarian Universalist Association of Congregations creating equal access to create a welcoming and inclusive faith community for people with disabilities
United Church of Christ Disabilities Ministries to be a church where everyone is welcome, an inclusion ministry for the United Church of Christ
United Methodist Task Force on Disability Ministries the home of the UMC disability task force
Zachariah’s Way Zachariah?s way is a ministry to children and adults with physical, mental, emotional and medical disabilities. On-site seminars are provided to churches seeking to establish disability ministries.


Education

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Resource Description
Autism Educators, Inc. This is a site for teachers of students with Special Needs to share their activities (ready to download) with other educators, parents, and caregivers. A portion of all proceeds is donated to Autism awareness and research.
IEP Resources and Support special education support from parents of children with special needs
Individuals with Disabilities Education Act Individuals with Disabilities Education Act (IDEA) is a law ensuring services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to more
ISER Nationwide directory of special education professionals
Mikey- A Day at School Seen Through the Eyes of a Child With Autism You are vital to help a child and an adult, better understand a student with autism in the classroom. You are vital to help a teacher and an administrator better understand a student with autism in the classroom. You can help a pediatrician, a famil
National Association of Special Education Teachers special education website for teachers and se professionals
National Center for Learning Disabilities resources for the learning disabled
Old Souls…Young Hearts: The Official Little Billy Theme Song Album Little Billy is an original animated sitcom created by Simpsons animator, Chance Raspberry. This ’80s nostalgia series is the first and only cartoon ever geared towards Tourettes, ADD, ADHD, OCD, Autism, Asperger’s, Generation Rx, and Special Needs!
Parent Pals Special education website focusing on parent and professional support of special needs children
Special Education Advisor a community of parents, educators, and special education service providers dedicated to helping families with special needs.
Special Education Alliance organization of parents and professionals dedicated to advocating for educational excellence for special needs children
Special Education Resources (SERI) Special Education Resources on the Internet (SERI) is a collection of Internet accessible information resources of interest to those involved in the fields related to
SpecialEd Net Special education resources
Spina Bifida Association National Spina Bifida Association website for the US.
The Story of the Hairy Fairy A 32 page, fun, hardcover book. Full watercolor illustrations. Written by Jason Varley. Jason is a teacher to children with Special Needs.
TinSnips a special education resource containing toold for teachers of students with special needs
Wrightslaw the leading webite for all things special education, advocacy, law, and resources
Yamie Chess Designed by experienced math teachers and U.S. Women’s Chess Champion Jennifer Shahade, offers math learning for both children with learning difficulties and gifted students.


Feeding/Feeding Tubes

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Resource Description
3Tiny Blessings Specialty items handsewn per custom order. Gtube pads and special needs items.
Abbott Patient Assistance Program Financial assistance for the purchase of prescribed enteral, parenteral, and other abbott products.
Adorabelly Design Feeding tube covers who put the FUN in functional!
AMT Gastronomy tube, naso-gastronomy tube, and enteral tube products.
Beck Family Blessings Gtube pads
Belly Buttons Fun and functional feeding tube dressings (pads), and protective belts.
Buton Hugger Button Huggers are designed to replace the gauze that the doctors and nurses give you to keep a tube site clean. While it gets the job done, the gauze can be uncomfortable and is not attractive to the eye.
Covidien Kangaroo Joey Pump Customer service and manufacturing information for the Kangaroo Joey feeding pump.
Cutie P’Tubies G tube and J tube pads
CUTIE P’TUBIES G/J/Cecostomy Pads, Belts, Feeding Pump Backpacks and chest straps, Pad Holders, Trach Pads and Trach Strap Skins
Dysphagia Resource Center This site caters to dysphagia and swalloing disorder professionals.
Feeding Essentials Gtube pads (button cuddlers) and feeding backpacks/tubing covers.
Feeding Tube Awareness Provides practical information of tube feedings and raises awareness
Functional Formularies-Liquid Hope The world’s first organic real whole foods feeding tube formula and meal replacement MD approved, RD recommended.
Halaynas Hope Shop Gtube pads and variety of other medical pads/dressings
HelpUsEat Gtube pads
I Love Somebody With a Tube specializes in making G-tube pads, trach pads & Belly Belts
InfantRefluxDisease.com Everything you need to know about pediatric reflux and GERD.
Julias Gtube Pads Fun and functional gtube pads, nursing pads, trach ties, and bibs.
Just Food: Real Food Meals for Feeding Tubes Just Food provides shelf-stable 100% real food meals for people on feeding tubes.
Kate from Project Sloopy Helping people worldwide get the medical supplies they need
Kennedy Krieger Institute One of the leading programs in the nation designed to help children with feeding disorders participate during daily meals with their parents and caregivers.
Kira’s Kreations Custom trach pads, gtube pads, and related items for special kids.
Mayhem In The Kitchen Fun, healthy meals created by Moms that are easily adapted for all different likes and textures. Recipe of the Month included!
Mealtime Notions Mealtime Notions LLC was created by Marsha Dunn Klein, MEd, OTR/L to provide mealtime support for parents and professionals who feed infants and young children with special feeding challenges.
MIC-KEY.com MIC-KEY feeding port (tube) information and resources.
MOOG Enteralite Infinity Feeding Pump Customer service information for the Infinity (MOOG) Enteralite Infinity Feeding Pump Delivery System.
My Button Buddies Offering absorbent feedint tube dressings for adults and children in a variety of styles.
My Tubie Jammies adaptive footie jammies and outfits for feeding tubes and other medical tubes and wires
MyPokit MyPokit (pronounced “My Pocket”) is a perfect solution for G-tube, J-tube and central line patients
Patchwork Peddler Gtube pads
Pediatric Digestion and Motility Disorders Society, Inc. The Mission of PEDS is to raise funds for the research, diagnosis and treatment of Pediatric Gastrointestinal, Motility and other related diseases, while supporting efforts to find a cure.
Pumpkin Packs Adorable and affordable backpacks for our little pumpkins with feeding tubes.
Sew Amazing Creations Gtube Pads and embroidery shirts
Shelby’s Button Cuddlers G-tube pads at a reasonable price w/ materials that don’t irritate the skin.
Something Sew Special Gtube pds, bibs, bandana bibs, chair pads, bed pads, arm socks, ponchos and other items for special needs children.
Stacy Rae Creations Gtube pads
The American Society for Parenteral and Enteral Nutrition Professional society.
The Blenderized Diet Promoting blenderized whole foods diets for health and healing in tube fed patients.
The Button Buddy Cheerful, functional G-Tube Pads for leakage, spinning and granulation tissue problems.
The Food Allergy Foundation a national nonprofit organization dedicated to helping families and individuals manage life with food allergies.
The Gluten Free Foundation Gluten Free Foundation exists to facilitate gluten free living by raising public awareness and funding for the purpose of providing resources to enhance the lives of people living a gluten free lifestyle.
The Oley Foundation Tools for living a better life on home IV and tube feedings.
Therapy 2000 Vital Stim® VitalStim is the FDA approved treatment method for Feeding and Swallowing therapy. It uses neuromuscular electric stimulation to establish muscle-nerve memory patterns to help strengthen the muscles used for chewing, food management, lip
ThriveRx ThriveRx is a national infusion pharmacy providing nutritional support for individuals on TPN and/or enteral feeds at home.
Trendy Tubies Trendy Tubies offers decorative covers for your G-Tube Protective Belt, that are fun, fashionable, and interchangable to give children the option of mixing and matching as much as they please!
Trendy Tubies Trendy Tubies is an authorized retailer for the Benik Belt. Trendy Tubies also offers insulated feeding bag covers, syringe rolls, accessories for the Benik Belt, and modified backpacks for feeding pumps.
Tube Tabs – Reusable and washable G-tube pads Tube Tabs makes custom washable and reusable g-tube pads for those with buttons.
TUBEalicious Tushies Med Port Covers, Cloth Diapers, Trainers, Waterproof Wheelchair/Car Seat/Bed Underpads, Etc.
Tubie Whoobies (Gtube Pads) Decorative and functional gtube pads, PICC pockets, and custom hospital gowns.
TuFe Boutique Backpacks: Handmade feeding tube backpacks for the Infinity pump and Kangaroo Joey pump


Financial Assistance/Funding Sources

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Resource Description
All for One – One for All Foundation The All For One – One For All Foundation assists financially burden families who cannot afford the burial expenses for their child.
Be An Angel Be An Angel is a non profit organization that strives to help families with children who are profoundly deaf and those who suffer from multiple disabilities. They provide financial assistance to help families obtain necessary equipment and pay for th
Childserve ChildServe is a not-for-profit organization that partners with families to help children with special health care needs live a great life. Originally founded in 1928 as a convalescent home for children, today ChildServe provides specialized pediatric
Disabled Childrens Relief Fund providing medical devices and equipment for eligible children in need
Easter Seals providing a variety of programs and services for eligible children in need
Evas Gift Non-Profit Organization Evas Gift is a 501 (c) 3 Non-Profit organization in St. Augustine, Florida giving local families with special needs or disabled children the ability to focus on enjoying their children rather than worrying about financial constraints.
Louis R. Cappelli Foundation Grants for Special Needs Support Programs Louis R. Cappelli Foundation Grants for Special Needs support programs that encourage the special needs of youth in three specific areas: education, health and fitness, and arts education.
Marlee Factor Foundation The goals of the Marlee Factor Foundation is to help families with chronically ill children, help families who are interested in adopting special needs children, and to help families affected by tuberous sclerosis complex.
Move Your Mountain Crowdfunding platform that allows you to raise money for medical bills, equipment, anything really.
The Connor Kirby Infant Memorial Fund When a couple is expecting a baby, the last thing most of them are financially prepared for is the funeral and cemetery expenses. That’s why we want to help.
The Kaitlin Marie Bell Foundation the goal is to provide every disabled child with the equipment he or she needs to live as close to a normal life as possible.
The Lindsay Foundation The Lindsay Foundation is a non-profit organization whose primary goal is to assist families with resources necessary to provide medical treatment, therapies, and equipment.
The M.O.R.G.A.N. Project Making opportunities happen by providing funding assistance nationwide (US).
The United Healthcare Childrens Foundation providing grants to eligible children with special health needs
Trappist Children’s Casket Fund The Child Casket Fund is an opportunity for benefactors to help alleviate stress during a trying time by reducing or eliminating the financial burden to families who are in need of a childs casket


Fundraising – Personal

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Resource Description
Austin Cline Van Trying to raise money to get a handicap van for my son.
Barganier Relief Fund Raising funds for family needs – power, house note, etc…
Bring these precious girls together! We are fund raising for these two little girls to be able to meet eachother, Brooke and Brooklyn, both born with Mosaic Trisomy 14 one in New Zealand, one in Australia., they are both the only ones in each country with this rare disorder.
Harley’s Angels This fundraiser was teamed up with 3E Love to sell Harley’s shirts. The shirts will be on sale through October 7. The goal is to get enough funds to purchase a hand bike for Harley who is a paraplegia wish child.
Headstone for Andrew Still trying to pay for my sons headstone
Help a Special Boy Go Fund Me for Richard
Help Elijah get a portable oxygen concentrator Elijah is oxygen dependent and in need of a portable oxygen concentrator that will make getting around easier and safer for him.
Henry’s Walk & Roll for a Cure 5k Run/1mile walk along with other family fun activities including face painting, live music, vendors and more to raise funds for The National MPS Society. 100% of proceeds will go to MPS Society to fund research and family programs.
Hope For Kylie- A Traumatic Brain Injury Journey We are hoping to fundraise to help buy equipment for my daughter. We also will be selling awareness shirts from time to time. Please click “donate” on our FB page or ask about our awareness shirts. Thanks!
light up Zanders life Rasing funds for a very special boy to change his life & lighten others lives
Little Monkey Fundraiser Our family is raising funds for our International Adoption of a Special Needs child.
Madelyn’s Journey Mady is going in for her 3rd open heart surgery and because we need to take off from work to be at the hospital with her as well as care for her 3 siblings at home we need help. You can read her full story under the link posted.
Mason’s Medical Fund Fundraiser to help meet family medical deductible.
Milleigh’s Miracles Journal of my infant daughter with cerebral palsy from a near SIDS event
Natural Fudge – The Mill Fudge Factory Have a natural fudge (delicious!) campaign, like a girl scout cookie campaign, to raise 30% of sales for your needs (equipment, special opps,general expenses). We’re a family business with our own Miracle and understand we sometimes need extra cash.
Nothing But a G Thing, Baby! Help this amazing little girl learn to eat by mouth!
Owen’s Pals Owen’s Pals raises money to benefit families in need of pediatric palliative care services, locally in the Central Ohio area.
Please help sebastian get his mobility van we have a 3 year old son who is severely disabled he can’t walk talk or eat by himself but he is perfect in every way.. trough out these past 3 years we have continued to work so that we can offer our son the best he deserves.. right now we are stru
Spencer’s Story Hydrocephalus Spencer has had 6 brain surgeries due to his hydrocephalus. Hydro affects 1in500 babies & has no cure! The only treatment is neurosurgery to install a shunt, Which has a 50% failure rate in first 2yrs, THE HIGHEST FAILURE RATE OF ANY MEDICAL IMPLANT!
The Younes Family Trying to raise funds to purchase cooling vests for my 2 little ones. Also trying to repair Jaydon’s Rainbow play set from Make A Wish
Weedman Clan In Crisis Trying to raise money for respite, as none is available to us through insurance


Inclusion/Accessibility

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Resource Description
Additional Chairs for Additional Needs (A.C.A.N.) Mission to get safe seating in resturaunts nation wide
Canine Companions for Independnce Great organization providing highly trained Service and Skilled Companion Dogs for children and adults with special needs.
CLU Campaign Designed to promote, improve, and establish inclusion for special needs individuals in their communities (beyond work & school).


Legal

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Resource Description
Academy of Special Needs Planners assist special needs attorneys in providing the highest quality service and advice to individuals with special needs
American Bar Association Commission on Disability Rights Information and services on disability law and rights.
Americans with Disabilities Act Guidebook to Disability Rights Law
Disability Law Center (Utah) Since 1979, the Disability Law Center (DLC) has helped thousands of Utahns with disabilities and their families. The DLC has broad statutory powers to safeguard the human and civil rights of persons with disabilities. We provide self-advocacy assista
GuardianPack GuardianPack is a suite of tools that allows parents to document the information that future guardians and caregivers would need to know. Parents can create a will to name future guardians, as well as create an instruction manual for these guardians.
ISER Internet Special Needs Directory Special Needs and Special Education Advocacy and Law
Special Needs Alliance The Special Needs Alliance is a national, non-profit organization committed to helping individuals with disabilities, their families, and the professionals who represent them
The Center for Special Needs Planning a team of attorneys who specialize in addressing all of the legal needs of families that have a loved one with special needs
Wrightslaw Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.


Medical/Therapuetic

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Resource Description
Medicaleshop Inc is an established Home Medical Equipment provider with specialization in Custom Manual & Power Wheelchair Seating, Home Accessibility and Rehab Products for Special Needs Kids.
Brody Born A Heart Hero Brody a sweet 1 year old who has already underwent 2 open heart surgeries, and has 1 more at least in his future!
Clinic for Special Children The Clinic for Special Children is a non-profit medical and diagnostic service for children with inherited metabolic disorders in Lancaster County, Pennsylvania. The clinic was established to provide comprehensive medical care for children with chronic, complex medical problems due to inherited disorders.
eKidzCare We offer pediatric home healthcare to children with medically complex needs.
Medek approach to physical therapy My daughter was recommended to this company for a new approach to physical therapy. Parents come their from all over to try this amazing technique. Highly recommended.
Music Therapy – Los Angeles Please visit my website. My Special Needs program currently ranges from children with Cerebral Palsy, children with Autism, and all children in-between!!.
Music Therapy-West Chester OH Music Therapy Care, located in West Chester, provides music therapy groups and individual sessions to individuals with special needs to develop identified areas of need, ages 2 through adult, at their West Chester office. Adapted music lessons are a
Neotech Products Neotech Products is a disposal medical device manufacturer or trachoestomy holders, skin care products, and suction devices.
Rock-A-Thigh Baby The cutest AFO socks ever! Great for kids with AFOs, KAFOs, or body harnesses.
The Lindsay Foundation Providing medical needs to special needs children with long-term catastrophic disorders.
Therapeutic Listening Program Program for kids with SPD
Theraplay, Inc Private provider for speech, physical and occupational therapies in PA
Therapy 2000 Established eleven years ago, THERAPY 2000 continues to deliver the highest quality individualized home care rehabilitation services to the children in Texas. We visit patients in the comfort of their home or daycare. THERAPY 2000 provides occupatio


Miscellaneous Products/Services

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Resource Description
CancerTees.com Founded by a family affected by cancer. CancerTees.com sells cancer awareness apparel and uses funds to raise money for individuals battling cancer
Children’s Book “Too Much Velcro” The book “Too Much Velcro” is a fictional story intended to delight young readers. This amusing story is based on everyday life experiences of a child with special needs.
Childrite Seat Covers Childrite Seat Covers designed exclusively by SlumberSecrets
For His Glory Screen Printing Hand-dyed, hand screen printed clothing with a special needs twist
Grow With me Photos Photography services in in the Hampton Roads area of Virginia. Has experience and a special interest in those with special needs. Understands that sessions make take longer than the typical family and is willing to accomidate for that.
Koolway Sports Koolway Sports designs outerwear for people in motion- enabling them to achieve their maximum level of independence in all aspects of life!
Little I.V.’s a table top miniature IV pole for easier travel.
Rett Girl A site for product reviews, ideas, tips from families and other resources for special needs.
Sarah Jane Project Sharing information and resources for children with brain injuries
Southeastern Ohio Center for Independent Living We serve people with disabilities in Fairfield and Hocking Counties, Ohio. Core services include: Information and Referral, Independent Living Skills, Advocacy, Peer Support, Community Transition. Find us on Facebook www.facebook.com/socilohio
Special Needs Neighborhood A collection of links by category useful to life with a child that has special needs.
Sweedie Kids Bandana Bibs Trendy and functional bandana bibs for kids of all ages.
The Oklahoma Family Network e,optional support or resources for families in Oklahoma
The Special Guide The Special Guide lets parents of children with special needs or learning challenges search for and share their reviews of local therapists, doctors, school, camps and other businesses and service providers
Thirty One Gifts Functionality and organization are key when you have a special needs child. Thirty One gifts can offer creative and stylish ways to organize our kiddos medical and personal supplies.
Thoughts With Dots, Custom Braille Jewelry Handpainted Custom Braille Leather Bracelets
TigTagz ID Wristbands for kIDz Personalized ID wristbands. Can add medical alerts and contact phone numbers.


Other

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Resource Description
Angels of Care Durable Medical Equipment and Supply We are a DME in north Texas. We have a wide range of medical equipment and supplies and service a large portion of the north Texas area.
Awareness bracelets and more I sell all diff types of awareness bracelets and necklaces
bracelets for a cause i sell rainbow loom bracelets with any color to represent whatever cause you need it to and almost any name, depending on length of name.
Downs Designs
First and Then Images First and Then Images : First and Then in Autism World and The Arts
Imprint on My Heart Memorial Jewelry Imprint On My Heart offers the finest custom fingerprint jewelry in sterling, 14k, 18k and platinum. Each piece is custom made for you with your inspiration.
Prayers for Lilly Awareness page of Lilly living with CP
Service Dogs Leave guestbookessage and I will email my service dog resources and/or answer any questions.


Parent Support

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Resource Description
American Cancer Society National organization to help families dealing with Cancer (any age) diagnosis.
Amy and Friends – Cockayne syndrome support To promote awareness throughout the world and a better understanding of Cockayne Syndrome within the medical profession. Uniting families together for support. http://www.facebook.com/pages/Amy-and-Friends-Cockayne-Syndrome-Support/194689768374
Angels with Missing Pieces To spread awareness and provide support for families and individuals dealing with 22q11.2 Deletion syndrome, also called VCFS or DiGeorge Syndrome.
Autism Society National organization to help families dealing with Autism and related conditions.
Brynnes Smiles An organization designed to support families and individuals in need.
Claire Bear Foundation The Clairebear Foundation is a non- profit organization that provides financial assistance for families taking care of sick children far from home. They give financial support to these families to cover lodging, travel and other living expenses.
Coping With Laryngomalacia, Inc. Coping With LM is an all volunteer, nonprofit organization that provides support, strength and education for parents, families and patients coping with LM, TM and/or BM. All birth defects of the airway.
Different Dream Parenting: A Practical Guide to Raising a Child with Special Needs Different Dream Parenting offers biblical insights and practical resources to equip parents of children with special needs.
Down Syndrome with Unbalanced AV canal Our child survived the odds of having Down Syndrome and UBAVC (HLHS)
Exceptional Families Network We are a nonprofit organization that empowers families who have children with special needs through support, education and advocacy services within the south Puget Sound region of Washington State.
Faith & Friends, Inc Faith & Friends exists to aid families with special needs children in finding resources; providing services unique to special needs families; educating the community about special needs, and making life more fun for all.
Family Voices Indiana Family Voices Indiana is a family-led organization that provides information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.
Global Hydranencephaly Foundation Family-to-Family Resource Network Our family support network on Facebook.
Global Hydranencephaly Foundation on Facebook The Global Hydranencephaly Foundation on Facebook: reaching out to families across the globe who are faced with the diagnosis of hydran for their little loved ones.
Hand to Hold Serves NICU families in the NICU and beyond.
Holding Tiny Hands Foundation Holding Tiny Hands provides support families with infants in newborn intensive care
Hydrops Fetalis Parents Support Group Support group for parents who have experienced hydrops. We welcome parents of hydrops survivors, angels, and parents of newly diagnosed fetuses/neonates.
J&M Preemies Non profit geared toward providing parents with little ones in the NICU some time away
Kinsights A free online health records platform and advice-sharing community for parents.
Laryngomalacia, Tracheomalacia, Bronchomalacia Australia An Australian based online support group for anyone with an interest in with Laryngomalacia, Tracheomalacia and Bronchomalacia. .Our group is based in Australia but is welcoming to members world wide.
Let’s Talk Tubie This page has been developed to connect with others who are tube dependent or may be caring for someone who is tube dependent. It’s a place to ask questions, get advice, share experiences or just vent.
Life with Grace Life with Grace is a resource book for parents of premature babies.
Lilly Lane Kids Without Diagnosis A place,to find information, support,and resources for parents/caregivers of kids,with undiagnosed illness or disabilities
Little Violet’s Journey Violet has a 1.1mb deletion of 17q22, looking for answers.
Made Meaningful http://mademeaningful.com/
Memories are Forever-Child Loss Support To help others cope with the loss of a loved one
Moms of Trach Babies We are a support community for Moms of Children with tracheostomies. Bringing together trach moms for support, advice, and connection with other trach moms!
NKH International Family Network This page is an Internet presence of a network of parents with children with Nonketotic Hyperglycinemia (NKH), a rare and still incurable metabolic disorder.
Our Special Families Village Our Special Families Village is for Families who have members with Intellectual and Developmental Disabilities. A “one stop shop” to make finding information and resouorces as easy as clicking your mouse.
Parent Support/Blog Dynamic Mom, is a social networking community dedicated to all MOMS with special needs children.
Parent to Parent of the USA P2PUSA Promotes access, quality and leadership in parent to parent support across the country.
Pink Roses for the ILL book: A true story of severe illness, near death experience… An amazing, true story of illness and triumph written by Sandra Nicole Concepcion. Final chapter offers 3 sections of Understanding, Family & Joy for those who are severely/terminally ill, caretakers and family units. www.sandranicoleconcepcion.com
Postpartum Neonatal Coaching Blog A place where moms, dads, and families of premature infants and sick newborns honor their emotional journey through the NICU as the first step to healing.
Preemie Prints We are a nonprofit organization sharing hope with families who have babies born prematurely or critically ill through a variety of support programs.
Purple Goose Kids aim to increase special needs education awareness and advocacy, to improve decision making and quality care, resulting in optimal support services
Single Mothers Who Have Children With Autism This page was created by a single mom raising a child with autism to serve as a forum for single mothers who have children with autism to share experiences, stories, resources, trials, challenges, achievements, recommendations, funny stories and any
SPECIAL Families of Pierce County SPECIAL Families of Pierce County is a support group for parents of children with special needs in and around Pierce County in Washington State.
Special Needs Support – Upstate NY This group hopes to provide support to all parents and caregivers in the NY Capital Area area that have children with special needs. We provide a place to ask questions, get/get advice, and share information.
Spina Bifida Association of New Zealand Welcome to Spina Bifida Association of New Zealand. We are a non-profit organisation dedicated to support and encourage parents expecting a baby diagnosed with Spina Bifida and parents of children, young adults and adults living with Spina Bifida.
Supporters of Children with Additional Needs S.C.A.N. All inclusive of DX and siblings in Lebanon MO
Team Bean Miracle in the making
Texas Parent to Parent Serves families who’s children have special needs throughout Texas.
Thankful Parents of Miracles This group is a support group for parents with Special Needs children
The Food Allergy & Anaphylaxis Network (FAAN Created as a way of providing education and support to the many parents who needed help managing food allergies.
The Gift of Faith Project Providing assistance to families of premature babies.
The Global Foundation for Peroxisomal Disorders The Global Foundation for Peroxisomal Disorders is a 501(c)(3) public charity committed to funding research to develop a greater understanding of Peroxisomal Biogenesis Disorders (PBDs).
The Oklahoma Family Network Oklahoma P2P
The Special Needs Planning Center The SNPC is a family and financial planning firm that has exclusively served parents of children with special needs for the last decade, coordinating financial, legal and benefit plans.
UNIQUE ME MAGAZINE Unique Me Magazine is a publication that was started by 2 Moms of daughters with Cerebral Palsy. This is a family magazine that includes ALL the children in the family; even those children with a physical, developmental, medical special needs.
Warrior Baby Book A childrens book I wrote with love to honor my son wylder james who passed away in july battling Niemann Pick Type A. Simple words with a BIG message that many of you all with relate and be comforted by. I hope you buy and enjoy reading this book.
WonderBaby.org WonderBaby is dedicated to helping parents of young blind children as well as children with multiple disabilities.


Personal Blog

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Resource Description
19 Special Needs Stories Every Sunday they select the week
5 Minutes for Special Needs Support, Insight & Inspiration for Special Needs Families
A cure for quinn A place for support hope and insight.
A Very Special Case’s Facebook Page. My son was born with many problems. I created a Facebook [age and blog to support, inform and connect.
A Very Special Case. Our fourth child is a special needs boy named Case Daniel. This is his story.
Abbie && Anna my little miracles im maranda corley and this is the journey of my disabled twins..
Adapted World of a Complex Child
Adventures With Kaelyn Following the adventures of a baby girl born with heart defects.
Amy Sue Root child with tbi
And Life Goes On ... A blog about every thing and nothing...a place to put my thoughts and move forward after the loss of my son.
Angels Among Us Angels Among Us is a place to learn, share, encourage, and grow as we travel this wonderful journey of raising the angels we've been given.
Bentleesblog Mu daughter , Bentlee was diagnosed with a very complex heart defect at 18 weeks gestation. This is our story right from the beginning! Our feelings, emotions and frustration come out in the blog.
Braydens Brigade Brayden was born with a rare genetic disease and has been fighting for life since birth, this is his personal Blog that was started to update his progress.
Brody's Journey - A CHD Warrior
Broken to Beautiful: A Mosaic of My Life This is my journey as a single parent of a special needs child. The joy, the pain and the lessons learned.
Caffeinated Autism Mom Musings from a caffeine-fueled, slightly crunchy, Type-A mom of 2 boys with autism, sensory issues, and multiple food allergies.
Casey's Story A BLOG and so much more about a medically fragile little princess and all of her victories.
Chasing Zebras Our journey with our undiagnosed little mystery babies.
Chiappetta Son with alobar holoprosencephaly
Christina's Journey Our journey with our daughter.
Confessions of a Nondomestic Housewife A mom of 4 (2 with special needs) BLOGs about homeschooling & homemaking with a little humor.
Connor John Corkern (The adventures of Connor man) Blog I started this blog for my little boy Connor when he was only a few months old. He is blind, severely delayed due to a brain malformation, hormone deficient, and very medically fragile. His blog is about all of his "adventures"
Donovan's Journey Donovan is an amazing 10 year old who has Vater Association/Noonan Syndrome and has overcome a lot in his life already! This page was created to keep those who wish to be updated on his medical conditions, procedures, surgeries, pictures, etc.
Easton & Owen Loveday Follow the journey of two special needs twins and their family. The boys were born at 25 weeks gestation and have a host of diagnoses and medical problems including cerebral palsy, epilepsy, and many others.
Elijah Kevin Rouse - A glimpse into his amazing life... A blog about the struggles and joys of raising our amazing son who is diagnosed with PDD and Klinefelters and is tube fed.
Elijah the Amazing Micropreemie Miracle The continuing journey of Elijah surviving triplet brother of David and Lucas, born 16 weeks to early due to Twin to Twin Transfusion Syndrome.
Erin Youngblood Family Blog on Shelby Utica Patch Our journey with our amazing son Brady who has a 1q duplication
Exceptional Family A collection of BLOGs by families with exceptional kids.
Feeding Raya A blog about a little girl named Raya and her feeding tube journey.
Finding Amy Our kuttke gurk
He Maketh No Mistakes A blog of our family since we left the NICU 6+ years ago with our profoundly brain injured son
Hope For Kylie- A Traumatic Brain Injury Journey Please "like" and share our FB page as we help tell Kylie's story of Traumatic Brain Injury and help raise awareness!
Hopeful Parents A collection of BLOGs by parents of children with special needs.
Inchstones to Heaven A mom's very honest and personal thoughts on the life of an extreme parent.
Jack...The Story So Far A website about our son Jack who has M-CMTC Syndrome
Journey of the Bees: Global Hydranencephaly Foundation blog The blog, detailing the lives of our little "bees" as they live and defy all odds against them... with a diagnosis of hydranencephaly, a rare neurological condition affecting 1 in 10,000 births.
Karleigh's Journey Karleigh was born with a rare syndrome. She has Mowat-Wilson Syndrome. We just want to share our little girl with you and want as many Prayer Warriors as we can get. It's not an easy road ahead but My little Miracle can take on anything!!
Keepin' up with Kamdyn This is a page for me to update and blog about my son kamdyn
KenleyMartin1 Journey of a Pediatric Traumatic Brain Injury and Stroke Survivor
Kiersten Curran's Carepage - Hydrocephalus, Craniosynostosis, Stroke Kiersten's journey through hydrocephalus, Craniosynostosis, stroke and severe brain injury.
Layla's Journey Layla was diagnosed with Acute Lymphoblastic Leukemia at age 2 on 1/7/2013
Life as a Leach I blog about being a special needs family with a daughter who has Cerebrocostomandibular Syndrome. Heard of it?! Seriously?! I would love to hear from you!
Life With Becca blog about life of little girl with epilepsy, our struggles and triumphs.
Little Violet's Journey Awareness for Little Violet who is a mystery
Little Wonders Journey of our son with Down Syndrome and Esophageal Atresia
Live, Love & Learn with Ms. MommyHH6 I am the wife of a Soldier, mother of 2, convert to the SAHM world, special needs parent/advocate and writer...
Living (and homeschooling) with the "A" Word Blog about my six year old with High Functioning Autism, and our homeschool adventures.
Love that Max A BLOG about kids with special needs that kick butt.
Made Meaningful This blog is not about praying so that your life returns to normal or better than normal, though we believe God can and does restore completely for some. Instead, this blog is about guiding people through storms that will bring a ‘new normal’, a di
Malena Lola - Tiny, Mighty & Fabulous This is the powerful and inspirationa journey of my little girl who was born a micro preemie at only 25 weeks gestation and weighed 1.6 lbs. After spending 8 months in the NICU, she is now a very happy toddler with a tracheotomy.
Mi-RARE-cles M.O.M.'s BLOG highlighting a different - rare- condition each week (Miracle Mondays)
Noah's Dad A dad's journey raising a son (Noah) with Down Syndrome.
Noah's Miracle The Journey of a little boy who after 13 minutes of no heartbeat or breathing survived.
Noahs Ark Noah was born with severe stage III Hypoxic Ischemic Encephalopathy. Here we share our journey...
Not Just Anyone: An Exceptional Blessing Encouragement. Joy. Hope.
One Bite at a Time Blog about our little miracle Zachary. Our undiagnosed angel and his short story as he passed away undiagnosed being only two months old. This is our story about our short stay in Holland.
Our Heart Warrior Our journey raising Aubrey. Fortunately her smile is even bigger than her list of diagnosis.
Prayers for baby Rachel Rachel's journey with spina bifida from fetal surgery to current date, clubbed feet
Prayers for Elijah Elijah has VACTERL which comes with a very long list of medical issues. On this page I keep updates on how he is doing...
Prayers for Marlee Marlee is our daughter who has tuberous sclerosis complex which is benign tumors and in her case they are in her brain. She has seizures and suffered many complications.
Raising hope - Special needs parenting The young single mum and the special child
Reconnect With Your Soul As tired and busy moms we often lose connection with ourselves...this blog focuses on helping you reconnect with YOU!
Riley's Smile Inspired by Riley, a child with multiple disabilities.
Sarah's sMILES Sarah is four years old. She was born with Mitochondrial Disease. "Like" her page on Facebook to show your support for the battle she is fighting and for our fundraising efforts as we raise money for a cure!
Snagglebox Autism parenting support - practical and encouraging
Special Parent Voice A personal & honest experience in raising a child with multiple special needs.
Such a big miracle in such a little boy my true little miracle Levi x
Tales of a Single Mom Raising a Child with Autism The thoughts, feelings and experiences of a single mom raising a child with autism.
Team Aidan Living in the new normal - our life with an undiagnosed disability
Terra Talking Blogging about life with a child with special/medically complex needs
The Journey We Are On A blog about the journey we are on with our son Ethan, who has a peroxisomal biogenesis disorder - zellweger spectrum: a very rare, terminal, metabolic genetic disease.
The Tomecko Echo The ups and downs of raising a surviving twin born at 23 weeks gestation, dealing with special and chronic needs, death of a child and raising 7 living children as well.
THIS I KNOW My blog about our undiagnosed 3 year old boy who's deaf-blind with multiple other disabilities. "Stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith & focus on the facts ..."
This is my life... A blog of my life, revolving mostly around my son who was born with a Congenital Heart Defect on 1/7/12. He has a feeding tube and I talk about our daily successes and struggles. I'm also trying to go green so I also share about our eco choices.
This Journey Our Life Sharing our personal journey of special needs parenting to encourage others walking a similar path.
Thomas Marshall Does It All I blog about my son Thomas who is blind. He has a g-tube and a great attitude. Watch as we help him learn how to do it all!
Thomas Marshall Does It All This is a blog about how one child who is blind experiences the world. Thomas is four years old and blind from Persistent Fetal Vasculature Syndrome. He also has Glaucoma, microphthalmia, microcephaly, hypertonia, and a g-tube.
Undiagnosed: The Story of Braxton Joseph Our family's blog documenting our experiences along this journey to find a diagnosis.
Welcome to Jeremy World The blog is about Jeremy, the miracle god gave me, his accomplishments and living life with him
www.noah4.shutterfly.com Features my amazing son who has CHARGE syndrome
Wylder Nation Joining forces so that one child's life will change many.
X Linked This rare, x linked hydrocephalus, boy is our miracle. This is his story
Zoes Journey with Microcephaly Follow Zoe on her journey from diagnosis of microcephaly to (hopefully) her diagnosis of her overall condition


Rare/Undiagnosed Conditions

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Resource Description
A Hydrops Miracle The story of baby who was prenatally diagnosed with congenital chylous ascites and hydrops fetalis (severe non-immune hydrops).
Brody a sweet Hypoplastic Left Heart Syndrome warrior Brody a sweet 1 year old who has already underwent 2 open heart surgeries, and has 1 more at least in his future!
Global Hydranencephaly Foundation Home Page for our foundation, reaching out to families across the globe touched by a diagnosis of this rare neurological condition for their child.
Hope for Hayden I created this page to have the love and support of our friends, family, and community as we embark on Hayden's journey!
mi-RARE-cles Mommies of Miracles Rare Diagnosis Blog
NKH International Family Network For parents/families/friends who have children with non-ketotic hyperglycinemia, a rare inborn error of metabolism.
Rare Disease Day
Syndromes Without A Name SWAN USA Support, information and advice to families of children living with a syndrome without a name.
The Global Foundation for Peroxisomal Disorders The Global Foundation for Peroxisomal Disorders is a 501(c)(3) public charity committed to funding research to develop a greater understanding of Peroxisomal Biogenesis Disorders (PBDs).
Trisomy13Archive.com Trisomy13Archive.com is a collection of 325 Trisomy 13 - Patau Syndrome Family Stories that have been Archived from 2005- 2010. This Community of Families, by sharing their Stories, Photos and Videos, began the MARCH Trisomy Awareness movement.
Unique The Rare Disorder Support Group Source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.
UR Our Hope A place for families that are dealing with rare and/or undiagnosed conditions.
Williams Syndrome Changing Lives Foundation Williams Syndrome Changing Lives Foundation is a non-profit foundation centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians and therapists. Williams Syndrome Changing Lives Foundation was form
Williams Syndrome Family of Hope Assists individuals with Williams syndrome for the purpose of alleviating some of the financial burden associated with Williams syndrome.
Wobbly Feet Foundation for Ataxia Telangiectasia A no-profit dedicated to raising funds for medical research of Ataxia Telangiectasia and to proving grants for families to use towards un-covered medical equipment and treatment.
X Linked This is our life with our rare, x linked hydrocephalus, boy


Seizures

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Resource Description
Chelsea Hutchison Foundation The Chelsea Hutchison Foundation is a Colorado non-profit corporation formed by Julie and Doug Hutchison to help individuals, particularly children and young adults, who have epilepsy. The main focus is to raise funds to pay for trained seizure-respo
Danny Did Foundation The Danny Did Foundation holds as its main goals: (1) advancing awareness of Sudden Unexplained Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and those afflicted by seizures, and (2) the mainstrea
Epilepsy Action Australia Epilepsy Action provides education and support services to children and adults with epilepsy or other seizure disorders across Australia
Epilepsy Foundation The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
Epilepsy South Africa The vision of Epilepsy South Africa is to provide integrated services that are equitable, accessible, sustainable and people centered with and for people with epilepsy and other disabilities and all affected by epilepsy, to promote social justice.
Epilepsy.org two organizations work in collaboration to raise awareness around the world ... and well-being for those afflicted with the condition and other related seizure
Hope For Matias My son, Matias has a rare chromosome disorder called Chromosome Ring 14 and as a result, he has very persistant Epilepsy. I created this page for him on facebook to spread awareness about Ring 14 and Epilepsy.
Infantile Spasms Forum A web based forum providing support to parents and care givers of children with Infantile Spasms.
Lennox-Gastaut Foundation The LGS Foundation is a nonprofit organization dedicated to providing information about Lennox-Gastaut syndrome while raising funds to help pursue additional research, services and support for LGS families.
National Association of Epilepsy Centers Access to more than 100 Level 3 and 4 epilepsy centers representing the majority of epilepsy centers in the U.S
STARS Syncope Trust and Reflex Anoxic Seizures The overall aim of the charity is to ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.
The Canadian Epilepsy Alliance (CEA) The Canadian Epilepsy Alliance (CEA) is a Canada wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and


Sleep/Behavioral Concerns

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Resource Description
Peace Weighted Blankets Affordable and Washable. Weighted blankets, Lap Pads, Stuffed Animals and More
Peace Weighted Blankets: Weighted blankets, lap pads, and more Weighted Blankets, Lap Pads, Stuffed Animals, and More for treating Sensory Processing Disorder, Restless Leg Syndrome, Anxiety Related Sleep Disorders, ADHD, and more.
The Safety Sleeper The Safety SleeperTM (Patent number: US 7,971,596 B2) is a safe, fully enclosed and portable bedframe for children and adults with special needs. The Safety SleeperTM was designed by a mother of an autistic child after a long struggle to cope with h


Wish Granting

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Resource Description
Adventures For Wish Kids - Ohio Provides continuing support and lasting memories for children and adolescents with life threatening illness and their families.
Angelwish - HIV / AIDS We are going to remove all the obstacles that have stood in your way of helping others, especially children and their families that are living with HIV/AIDS.
Believe In Tomorrow National Children's Foundation Our programs and services help children with life-threatening illnesses believe in hope, joy and the promise of tomorrow. Our foundation is dedicated to improving the quality of life for critically ill children and their families through three unique programs. Serving over 38,000 children each year, we have become a national leader in pediatric support services that help to ease pain, reduce loneliness and bring joy to children throughout their treatment process.
Benefit 4Kids Primary mission to grant the outdoor wishes of children with life threatening and life limiting illnesses.
Bryan's Dream Foundation The purpose of the foundation is to fulfill Bryan's dream by providing hope and support to children with brain tumors as well as their families and to ensure that no child's life is ended prematurely.
Buckmasters Life Hunts Life Hunts grants hunting trips to critically ill and extremely disabled children and young adults up to age 21.
Camp Sunshine Supports children with life threatening illnesses and their families. The camp has the distinction of being the only program in the nation whose mission is to address the impact of a life threatening illness on every member of the immediate family
Catch-A-Dream Grants once-in-a-lifetime outdoor experiences to children 18 years old or younger who have a life-threatening illness. Any child, 18 years old or younger, who is a U.S. or Canadian citizen, has a qualifying physician- certified life-threatening illness, and has not had another hunting or fishing grant, is eligible for consideration.
Chef David's Kids We help children afflicted with any form of terminal illness such as cancer, leukemia, and pediatric HIV. We also help with neglected and abused children. We have handled thousands of interactions and wishes for children in the last ten years and have never failed to help when needed, no matter how many times a child needs us.
Children's Wish Foundation International Children's Wish will fulfill the favorite wish for any child not expected to reach age 18. Each wish, truly the child's own, must be completed while the child is healthy enough to fully enjoy it. The immediate family is included in the wish fulfillment, so that the child and family will share in the experience and create happy memories together.
Cleaning for Cancer Free House Cleaning For People with Cancer and Critical Illness Free house cleaning for people with cancer, the critically ill and parents of critically ill children.
Dream a Little Dream The purpose of Dream A Little Dream was to create a fantasy bedroom for a child who has been affected by an illness, disease, or unfortunate family event.
Dream Factory The Dream Factory grants dreams to children diagnosed with critical or chronic illnesses who are 3 through 18 years of age.
Give Kids the World This organization is not a wish-granting organization in the strictest sense. Rather, it works with other wish foundations to send children with life threatening illnesses to the Central Florida area. Every child that comes to Give Kids The World does so with the sponsorship of another wish granting organization. It has served children from all 50 states and more than 45 countries
HopeKids Provides ongoing events & activities and a powerful, unique support community for children with cancer and other life-threatening medical conditions.
Hunt of a Lifetime A nonprofit organization with a mission to grant hunting & fishing adventures and dreams for children age 21 and under, who have been diagnosed with life threatening illnesses. We are doing what we can to make a difference in their life, a dream come true.
Jason's Dreams for Kids The organization is devoted to granting wishes to children diagnosed with life-threatening illnesses. Bringing a little happiness and putting a few smiles on these children's faces is our goal - and hopefully, their parents faces, too!
Josh's Hope Foundation Provides an opportunity for families with a special needs child to get away from everyday life.Adventures can be any outdoor activity the child wishes to do. Common activities include hunting, fishing, and camping. All arrangements and funds are provided by Josh
Kids Wish Network Kids Wish Network is a nonprofit charitable organization whose sole mission is to grant wishes to children with life-threatening illnesses. We're always looking for ways to provide unique services for sick children and their families that they are not likely to find anywhere else. Kids Wish Network has developed a funeral assistance program to assist the families of "our kids" who have passed away.
Make-A-Wish Foundation This organization which serves all 50 states, Guam, and Puerto Rico grants wishes to children in the United States with terminal illnesses or life-threatening medical conditions that create the probability the children will not survive beyond their 18th year.
Outdoor Dream Foundation A non-profit organization that grants outdoor adventures to children who have been diagnosed with terminal or life-threatening illnesses.
Ride the Wave Has a mission is to give children with special needs the chance to feel the thrill of riding a wave and experience a safe, fun-filled day at the beach, whether they are physically, developmentally or economically challenged.
Room to Dream Foundation The mission of the Room to Dream Foundation is to create healing environments in hospitals, communities, and homes for children and adolescents who are facing chronic illnesses. As they recuperate and recover, our hope is that their renovated spaces will improve their quality of life, promote strength, imagination, self-worth, and aid in their recovery processes.
Silver Linings Foundation, Cancer Among other things, the Silver Lining Foundation provides wishes for children with cancer while their are receiving treatment.
Starlight Children's Foundation This organization is dedicated to brightening the lives of seriously ill children through wish granting and state-of-the-art in-hospital entertainment. It has a network of chapters located in the United States, the United Kingdom, Australia, and Canada.
Sunshine Foundation This organization which serves those across the United States fulfills dreams and wishes of chronically ill, terminally ill handicapped and abused children. The majority of wishes the Sunshine Foundation fulfills are to visit a Central Florida attraction.
The Granted Wish Foundation It's purpose is "To provide wish fulfillment to disabled, disadvantaged and deserving individuals and families." The foundation is not just for young or terminally ill; it is for anyone who deserves a wish!
United Special Sportsmen Alliance A non-profit Christian organization that routinely coordinates with other caring organizations worldwide in fulfilling a dream wish. If you know of a child [or adult] who is terminally ill or disabled and would like to go on a FREE DREAM HUNT, FISHING TRIP AND CAMPING OR CANOEING please contact U.S.S.A and we will try to fulfill their
Wishing Well Foundation USA The Wishing Well Foundation will consider the wish of any child with a life threatening illness from ages 3 to 18. The Wishing Well Foundation receives referrals from doctors, nurses, and people just like you! Many of the wishes are for trips to theme parks or a special day with a special someone . . . perhaps a celebrity or hero. The wish can be most complex or very simple

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